Categories
Death + the Law Death Ethics

Terri Schiavo Five Years On

5 Years After Schiavo, Few Make End-Of-Life Plans
Matt Sedensky, Associated Press (March 30, 2010)

Five years ago today, Terri Schiavo died in Florida. March 31, 2005. I can’t believe that five years have already elapsed, in part because I was in the middle of finishing my Ph.D. dissertation on the dead body and also because the chapter I was working on dealt with Schiavo’s case. I had already decided to write on the right-to-die issues surrounding Terri Schiavo (in 2003, actually) but then events took a turn and the entirety of America watched her death unfold.

There is a lot more to say about Terri Schiavo and the court case(s) which surrounded her eventual death. No other human death has ever been so litigated in the American court system. In place of an indulgently long essay, here is an extremely useful Schiavo case timeline put together by the University of Miami Ethics Program.

And now, five years later, it’s hard to know how anything has really changed as it regards End-of-Life issues. What I do know is that the political battle which the Schiavo case caused has gotten less media attention but it remains a constant battle all the same.

More than anything what I think the Schiavo case demonstrated was the overwhelming sense amongst many Americans that they should be able to die as they wanted without governmental intervention. These sentiments made a mess of supposedly clear cut political ideologies, so much so that many conservatives and liberals found an issue upon which they agreed. Pro-life conservatives remained the most vocally opposed to letting Terri Schiavo die and that point has not changed.

This is death in the 21st century. And it isn’t going to get any politically simpler.

Categories
Death + Crime Death + Popular Culture Death + the Law Death Ethics Suicide

Kevorkian Revisited

Independent Minds: Dr. Jack Kevorkian (Listen to the audio)

Heard an interesting public radio broadcast this evening. It’s a series titled “Independent Minds” and tonight’s profile featured Dr. Jack Kevorkian. The show illuminates, through interviews, audio clips and sound bites, the life of the controversial “Dr. Death” and attempts to separate and dissect the man and the myth.

Want more Jack? Check out trailers for the upcoming HBO film You Don’t Know Jack, starring Al Pacino as Kevorkian. Directed by Barry Levinson, it also stars Susan Sarandon, John Goodman and Brenda Vaccaro. I don’t have cable and it could be a while before it shows up on Netflix. So if anyone catches it, by all means let us know and share your thoughts!

Categories
Death + the Law Death Ethics Suicide

UK Children Not Charged with Assisting Parents to Die

No Assisted Suicide Charge for Son of Sir Edward Downes
BBC News (March 19, 2010)

My very first post for the Death Reference Desk occurred on July 15, 2009 and it discussed the deaths of Edward and Joan Downes. The Downes’ went to the Dignitas Clinic in Switzerland to die together, their’s is a common story in the UK. Indeed, the stories about UK residents going to the Dignitas clinic remain an almost weekly occurrence.

What is new about the Downes’ case is that the Director of Public Prosecutions in the UK (Keir Starmer) has decided to not charge either of the Downes’ children with assisting their parents to die. I have discussed at length how suicide in the UK is legal but assisting a person to die is not. The Death Ref section on the Death + The Law presents these cases. Today’s legal decision is also important because it is the first time that the new guidelines drawn up by Keir Starmer have found no public interest in prosecuting a family member who clearly acted on compassionate grounds.

I am including a news clip from last July about Joan and Edward Downes. It’s interesting to note what has and hasn’t changed since then.

Categories
Death + the Law Death Ethics Suicide

2009 Oregon Death with Dignity Numbers

2009 Summary of Oregon’s Death with Dignity Act
The Oregon Public Health Division (March 2010)

Report Finds 36 Died Under Assisted Suicide Law
William Yardley, The New York Times (March 04, 2010)

Earlier this month, the state of Oregon published its annual report on who used the 1997 Death with Dignity Act. I have discussed the ins and outs of the Oregon law before but I want to highlight the following sections of the 2009 report:

• As in prior years, most participants were between 55 and 84 years of age (78.0%), white (98.3%), well-educated (48.3% had at least a baccalaureate degree), and had cancer (79.7%). Patients who died in 2009 were slightly older (median age 76 years) than in previous years (median age 70 years).

• Most patients died at home (98.3%); and most were enrolled in hospice care (91.5%) at time of death.

• In 2009, 98.7% of patients had some form of health care insurance. Compared to previous years, the number of patients who had private insurance (84.7%) was much greater than in previous years (66.8%), and the number of patients who had only Medicare or Medicaid insurance was much less (13.6% compared to 32.0%).

What is really important to note about the individuals using the Oregon law is their age, ethnicity, access to hospice care, and health insurance status. In a nutshell, the vast majority of the individuals were in the middle to upper middle social classes and hardly the lowest rung of Oregonians. This is important to point out because it demonstrates that this particular Assisted Dying law is not killing off the weak, the poor, and the uneducated.

In short, the law is not being abused.

Categories
Death + the Law Death Ethics

“Thank God for Dead Soldiers”

So says Fred Phelps. You may be familiar with Phelps and his hate-mongering followers—most of whom are actually his family members—because they have been making headlines for at least the past 20 years.

For the uninitiated, Fred Phelps is the founder and pastor of the Westboro Baptist Church in Topeka, Kansas. He is best known for his various anti-gay protests and placard-waving antics around the country, featuring such slogans as “God Hates Fags” and “Fags Die, God Laughs”, among other free speech protected hate bombs.

Earlier today, the Supreme Court decided that they will hear a case involving Phelps and the family of deceased soldier Matthew Snyder. In 2006, Phelps protested at Matthew Snyder’s funeral, claiming God hates America — and hence soldiers — because of our nation’s tolerance of homosexuality. One of the signs he and others waved had “Thank God for Dead Soldiers” plastered across it. The Snyder family sued and was awarded a judgement of $10.9 million dollars. However, last September, the U.S 4th Circuit Court of Appeals, overturned the decision on free speech grounds.

According to an article in today’s LA Times,

Snyder’s family appealed to the Supreme Court, saying the protests had “tarnished” their son’s funeral. “Matthew deserved better. A civilized society deserved better,” they said.

As Chris Weigant, of the Huffington Post points out, it is not so much about free speech per se, but rather, protected classes of speech such as religious and political speech.

It will be interesting to see what becomes of this case as it will test to what extent these classes are protected. Fred Phelps makes my skin crawl—as a librarian who supports the First Amendment—and as a human who finds the profanity of this man’s behavior repugnant. But ultimately, the case will come down to whether the Snyder family can claim damages in their case. According to the Citizen Media Law Project, the case centers on “defamation, invasion of privacy, and intentional infliction of emotional distress.”

Categories
Death + the Law Death Ethics Suicide

Living in America and Dying with Dignity in Europe

Frontline: The Suicide Tourist
PBS (March 02, 2010)

Assisted Suicide Guidelines: Family Can Still Face Prosecution
Sandra Laville, The Guardian (February 25, 2010)

Frontline, the documentary film unit for the Public Broadcasting Service in America, just premiered a really important new program. The film follows an American, Craig Ewert, as he decides to end his life at the Dignitas Clinic in Switzerland. What is unique about this storyline is that it focuses on an American going to Dignitas, which isn’t that common. To date, thirteen US citizens have ended their lives at Dignitas (as opposed to 135 Brits and 563 Germans).

The cultural, political and social issues surrounding Dignitas have been an ongoing topic in the United Kingdom, which makes the timing of Frontline’s documentary all the more uncanny. Last week, the Director of Public Prosecutions for the UK (Keir Starmer) published new guidelines for assisted suicide. Over the years, many people have wondered if “assisting” someone commit suicide included, say, going to Dignitas with the person. So much confusion has surrounded this UK law that short of actually changing it (which will eventually happen) the guidelines were published to help define whom the law can and cannot prosecute.

I have written extensively about the assisted dying debates in the UK on Death Ref (indeed, my first post was on an assisted dying case) and you can find a plethora of information in the Assisted Suicide section and the Death + the Law section.

As a final point of interest, the state of Oregon has published its 2008 Summary of Oregon’s Death with Dignity Act and you can see how people have used the law there to die.

In the end, the law will be changed in the UK and it will resemble Oregon’s law.

Categories
Death + Crime Death + the Law

Dying by the Numbers in Europe

Who Dies of What in Europe Before the Age of 65
Elodie Cayotte and Hartmut Buchow, Eurostat (2009)

On the heels of last week’s post about mortality rates in New York City, comes this hot hot hot report on how Europeans are dying. Special thanks to my good friend Gauti for sending it along.

The usual postmortem causing suspects are covered: heart disease, lung cancer, alcohol related deaths, suicide, transport accidents, cervical cancer, and AIDS. I read this report, in a bar, while drinking a pint of beer (I live in England…) which seems fitting given the high number of alcohol related deaths in the UK. Indeed, the report sums up overall EU mortality rates this way:

The countries with very low mortality below age 65 are Italy, Switzerland, Malta, Norway, Sweden, Iceland, the Netherlands and to a lesser extent Spain. Within the United Kingdom, there is a strikingly large north-south division that encompasses the whole range of EU mortality. A number of former industrial areas with high mortality are found in Northern England and the north- east of France.

And let me tell you, the North-South divide in England is intense. A person might as well just give up the ghost if he or she lives north of the Midlands. The difference in life expectancy between Southern England (where I live in lovely Bath) and the North is almost seven years. Across the board, in every category, death seems to lurk at every turn in Northern UK regions. It seems that television ads have become extremely important in this public health dilemma and I found the following binge drinking gems, per usual, on YouTube.

Categories
Death + Crime Death + the Law

Dying by the Numbers in New York City

In the City’s Vital Statistics, so Many Ways to Die by Accident
Al Baker, New York Times (February 15, 2010)

Summary of Vital Statistics 2008
Bureau of Vital Statistics, New York City Department of Health and Mental Hygiene (January 2010)

‘Tis the Season for Annual Reports on Mortality Statistics. The City of New York has now released its 2008 numbers for all forms of human death. Good news for Gotham: homicides are down and so are accidental deaths. That said, at least one person is killed a week while walking. Make sure and wait for the crosswalk sign.

Here is an interesting section from the New York Times article at the top on the overall mortality rate changes.

In 2008, of the 54,193 people who died in the city, 1,044 deaths (excluding drug overdoses) were classified by the city’s Department of Health and Mental Hygiene as accidental — an 8.8 percent decline from 1998, when there were 1,145 accidental deaths. In contrast, the number of homicides fell 17.5 percent in that same period. The contrast is more stark going back to 1993: accidental deaths have fallen by 30.1 percent, while homicides have dropped by 73.2 percent…

…There are roughly 6,000 codes used to define deaths by accident, reflecting all types of violence and disorder. People are run over by cars, buses or taxis. There are dozens of codes to define deaths from drug consumption. Some die from the smoke and flames of fires, or they fall at construction sites or in their own backyards. Others are hit by trains, drown at beaches or crash their bicycles.

I understand why Departments of Health compile these statistics because it is useful to know how people are dying in a local area. Lawyers generally like to know these numbers too and a good funeral director can just tell you how people are dying without even looking at the vital statistics. Death by the numbers, as I like to call it, also reminds me of Meg’s recent post on Life Insurance Policies. Mix in bizarre, insane, unbelievable accidents and you basically have the annual Darwin Awards.

But I digress…

If you are a true student of Mortality statistics (and I have some friends who are) then please download the official 2008 report by the New York City Department of Health and Mental Hygiene, Bureau of Vital Statistics.

And if your attention span can’t handle charts, graphs, and brief descriptions of tragedy then please, oh-please, watch these short Public Service Announcements about preventing accidental deaths in the workplace. I am always amazed at what YouTube offers when you really need a solid bit of video:

Categories
cremation Death + the Law

UK Hindu Man is Burning Down the House

Hindu Wins Northumberland Funeral Pyre Battle
BBC News (February 10, 2010)

Hindu Man Wins Court Battle for Open-Air Cremation Pyre
Matthew Taylor The Guardian (February 10, 2010)

It has been a big week for cremation in the UK. On Wednesday, Davender Ghai, a 71-year old Hindu man from Newcastle won a landmark court case on Appeal. The Ghai case is fairly straightforward: when he dies, he wants to be cremated on an open air pyre, as opposed to inside an industrial grade crematorium furnace. Mr. Ghai is a devout Hindu so his request is grounded in religious reasons.

When Mr. Ghai first made the request in 2006, he was told ‘No’ by Newcastle officials. He then took his case to the UK Courts and kept losing until this most recent decision.

I am providing an extremely rushed explanation of the case. Burning through it, you might say. The Guardian and BBC News articles at the top explain the case history. I also wrote about Mr. Ghai’s case a few weeks ago on the Death Reference Desk.

So let’s skip ahead to why the Ghai case is important. Two important questions were pondered by the Appeals Court: 1.) What is a building, as stipulated in the 1902 Cremation Act? And, 2.) Does the mere thought of an open air pyre cause the general public mental anguish?

In a nutshell, Davender Ghai agreed to a pyre enclosed by four walls (with no ceiling) and his lawyers demonstrated that his request didn’t cause the general public mental angst. Indeed, it seems to me that this form of ‘natural cremation’ (a term cleverly invented by Mr. Ghai’s legal team) will have a huge appeal to all the natural and green burial people in the UK. How that gets managed is an entirely different question, since Mr. Ghai made his request based upon religious reasons.

More than anything, this case demonstrates that supposedly immutable death laws can be challenged and changed to encompass the world’s religions. And in the case of Mr. Ghai, his request faithfully follows the law.

Watch this video to see Devander’s Ghai’s happiness with the decision. I have never been happier for an individual’s eventual death…

Video: Devout Hindu wins funeral pyre fight – Watch more Videos at Vodpod.
Categories
Death + the Law Death Ethics Suicide

Give Terry Pratchett the Freedom to Die…

Sir Terry Pratchett Calls for Euthanasia Tribunals
Maev Kennedy, The Guardian (February 02, 2010)

Terry Pratchett: My Case for a Euthanasia Tribunal
Terry Pratchett, The Guardian (February 02, 2010)

Last week, the British writer Sir Terry Pratchett (he of Discworld fame) catapulted the ongoing UK discussion on Assisted Dying back into the news. This is a persistent topic in the UK and I have written about it quite a bit on Death Ref here.

Terry Pratchett (who has been diagnosed with Alzheimer’s) is asking that a tribunal system be set up in England which then evaluates an individual’s request to die. The goal of setting up the tribunals is to make sure that any person making this request is of sound mind and not being coerced into the situation. Suicide has been legal in England since 1961 but helping another person commit suicide is against the law. So, a number of legal and political battles have dealt with the limits of what “assisting” another person means.

I have discussed these issues quite bit in the Death + The Law section.

In so many ways, this issue just keeps going and going and going. So much so, I’ve been collecting various articles for months because they appear daily and posting each one would be a full-time job.

Terry Pratchett’s request for a new UK system (or, at least, something for England… Wales and Scotland might be on their own) is another article for the group.

The problem, of course, is that all these issues and arguments are really interesting and important to discuss/think about/mull over.

But even I get Assisted Dying debate fatigue, and thinking about death is my job. The biggest dilemma, it seems to me, is that death is a human “problem” without terminus. At least in the twenty-first century West. England is certainly taking its time with any permanent changes to the law. It’s a slow process, to be sure, but it is a process. Terry Pratchett’s request will go a long ways in helping change UK law.

In the event you are a person doing research on Assisted Dying and the plethora of issues related to this topic, here are the articles that I have been recently collecting.

To wit:

The Guardian on the Dignitas clinic in Switzerland: ‘Death tourism’ leads Swiss to consider ban on assisted suicide

The Guardian on an elderly couple who committed suicide together: Couple wrote to BBC to tell of suicide decision

The Guardian on tour in the Dignitas clinic: Inside the Dignitas house

New York Times Magazine article on Brain Death and Organ Donation (which are related….): When Does Death Start?

New York Times on End of Life Care in California: Months to Live: Weighing Medical Costs of End-of-Life Care

New York Times on End of Life sedation: Months to Live: Hard Choice for a Comfortable Death: Sedation

BBC News on push in Scotland for a Terry Pratchett-like law: Most MSPs oppose end-of-life bill

Categories
Death + the Economy Death + the Law

Death: a High-Risk Investment and High-Tax Evasion Tactic

Grim Risks of Reaping Death’s Rewards
Leslie Scism and Larry Light, Wall Street Journal (February 6, 2010)

Slemrod Sees US Tax/Death Experiment
Marc Abrahams, Improbable Research (January 13, 2010)

Here’s a death and dirty money twofer for this lovely Saturday. Enjoy!

The Wall Street Journal reports on “life settlements” — investors buy elderly people’s insurance policies with the stipulation that they’ll cover the premiums while the person is still alive and then cash in upon death. As a result, the sooner death occurs, the greater the return on investment. Unfortunately (??) some people don’t go so easily…

Carol Tonzi, a court reporter in Palmyra, N.Y., sank $51,700 into partial ownership of a $5 million policy in 2003 … She says her tax preparer touted the investment as “safe and secure” and said her money in five years would grow to $82,720, a 60% increase.

But Ms. Tonzi, 52, is still waiting for the policyholder, now 89, to pass away. Over the past three years, she says she has shelled out an additional $15,000 in premium payments. She is suing the tax preparer … alleging negligent advice. “It’s a mess,” she says. “If I wanted to gamble, I would have left the money in the stock market.”

Ouch. In a similarly gruesome vein, Improbable Research (via BoingBoing) posted last month about estate taxes and timed deaths:

Our prize-winning research showed that when estate taxes are known in advance to be changing, some people time their deaths (or have their deaths timed for them) so as to save their heirs money. The evidence: in the U.S. history of estate taxes, when tax rates went up, there were less (than otherwise) deaths after the law change, and when tax rates went down, there were more deaths after the law change. …

Now the U.S. Congress has granted us a social scientist’s fondest dream — or worst nightmare — the perfect “natural experiment.” As of January 1 of this year, the U.S. estate tax has been abolished for the year 2010, and is scheduled to be reinstated in 2011 with rates as high as 55%. If our findings (and those of our colleagues in Australia and Sweden) are right, there some would be “moved” from the end of 2009 to the beginning of 2010, as some rich folks hold on to bequeath their assets tax-free. Of course, the really morbid stuff will happen at the end of this year, when dying in December of 2010 will incur no estate tax, but dying beginning in January 1, 2011 can trigger a tax liability equal to more than half the taxable estate. It’s being called the “Throw Momma from the Train” tax provision.

Weird, sad and huh? As one of them groundling proles who will inherit naught but gewgaws, good looks and bad circulation, I’ve never been compelled to imagine such things. Sounds like being super rich is unexpectedly macabre.

Categories
Burial Death + Technology Death + the Law

Premature Burial Device Patents

Brace yourself for some library science / classification / database search nerdery… or skip below to see a list of U.S. patents related to premature burial!

This morning I ran across a list of suspected premature burials with some interesting contemporaneous newspaper clips (it also links to How to Survive If You Are Buried Alive from the Worst-Case Scenario Survival Handbook — nice!).

It got me thinking: I love all those turn-of-the-twentieth-century inventions designed to save you in the event of your premature burial — bells attached to strings, extraneous air shafts and electrical devices that would detect your stirring corpse. I figured there must be patents on these, and sure enough: the United States Patent and Trademark Office (USPTO) provides them online.

Unfortunately their interface is exceptionally ugly, with a series of dazzling numbers and codes that make me salivate as a librarian oh sweet luscious data! but claw my eyes out as a blogger wanting to share something cool with reg’lar folk. In addition, many are images only that required a plugin I couldn’t make work. Argh! It’s all right there, and yet… not.

So I looked to our information overlord, Google. Google Patents draws data from the USPTO in the slick and familiar Google preview and downloadable PDF format (including all the fascinating line drawings). But, search fiend that I am, I could not in wholesale fashion extract what I wanted, either via keywords or using the US Classification field in the Advanced Search.

This allegedly corresponds to the PTO Manual of Classification for US Patents. The proper code, however — class 27 (undertaking), subclass 31 (life signals) — returned only a few results, with such oddities as “Optical Illusion Wear” and “Martial Arts Uniform Top.” A patent for a gi classified as a life signal device? Only if it improves one’s ability to karate chop out of a casket.

Stung by this death info travesty, I used the patent numbers from the USPTO list (generated by classification code) and found them on Google Patents, for the delight and convenience of the interwebs. (I did exclude a couple that were irrelevant, and there are a few below that seem more concerned with the living’s ability to monitor and view the dead… eek.) The dates below reference the filing date for the patent, not the issue date. Enjoy!

US Patents for detecting “life signals” / preventing premature burial

1984 — Apparatus and method for detecting body vibrations

1980 — Coffin alarm system

1954 — Safety release for refrigerators

1924 — Coffin
“This invention relates to an improved coffin and seeks, among other objects, to provide a coffin wherein a body may be preserved more or less indefinitely” with a sight tube extending from coffin to above ground “so that the body may be readily viewed in the coffin as desired.”

1921 — Attachment for coffin
“This invention has for its prime object the provision of a simple, inexpensive and durable device which can readily be applied to burial caskets for the purpose of enabling relatives and friends of deceased persons to view their features after interment.”

1912 — Life-detecting apparatus

1909 — Alarm for indicating life in buried persons

1909 — Apparatus for preventing human beings from being buried alive

1908 — Grave attachment
“This invention relates to new and useful improvements in grave attachments… whereby a body may be observed or watched after being interred.”

1907 — Safety-coffin

“This invention is distinguished from the already known arrangements by the fact that an opportunity is afforded the apparently dead person, when he awakens, of opening the coffin automatically, with very slight exertion on his part, so that he can immediately obtain a supply of fresh air and may afterwards leave the coffin.” In other words, it’s SPRING LOADED.

1903 — Apparatus for signaling from graves (Crosby and Henry)

1901 — Apparatus for signaling from graves (Griffith)

1900 — Apparatus for preventing premature burial

1899 — Electric device for indicating the awakening of persons buried alive

1899 — Coffin
“An improved coffin which permits the body to be kept during a certain time until decomposition sets in and, moreover, enables the person inclosed in the coffin to give warning if there has been a mistake.”

1897 — Apparatus for saving persons buried alive

1886 — Coffin
“My invention has relation to a coffin wherein the lid is provided with transparent doors or panels held down normally upon the lid against the tension of springs and adapted to be released and thrown upward from the lid upon the operation of a device located within the coffin.”

1886 — Apparatus for saving people buried alive

1886 — Coffin
“If the person buried in a state of trance opens his eyes on returning to consciousness, he sees light through the glass disks of the lid and will, on coming to his senses, unconsciously make a movement by which the mechanism which stands under the pressure of the springs is immediately released and the springing up of the lid is effected.”

1885 — Coffin
“We also supply the coffin with an electric battery, the wires therefrom leading though the air inlet pipe to an alarm on the outside of the ground, the circuit of said alarm being closed by a slight movement of the revivified person.”

1894 — Grave-signal

1893 — Grave-alarm

1892 — Coffin-signal

1891 — Annuciator for the supposed dead

1887 — Device for indicating life in buried persons

1885 — Burial-casket

1884 — Safety apparatus for the preservation of the dead until their burial

1882 — Device for indicating life in buried persons

1882 — Grave-signal



1878 — Improvement in coffin-torpedoes

1871 — Improvement in life-detectors for coffins

1868 — Improved burial-case